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CVSA Nordic

Rachel – CVS, a storm in a teacup…

Rachel – CVS, a storm in a teacup…

Rachel was born in January 2009, elated at her arrival, little did we know what was to come or what life had in store for us as a family.  She was always sick as an infant from birth; we were just shrugged off by any health professional we saw. It was the norm, “Infant colic”…

Metabolic cocktail

Metabolic cocktail

Dr Boles has been using a mixture of supplements to help CVS and other conditions. His latest supplement mix is now also available in Europe. Ask your doctor: It is generally recommended that your health care provider be aware of the usage of all dietary supplements, and SpectrumNeeds™ is not an exception. The involvement of…

Notes from the 13th CVSA International Conference

Notes from the 13th CVSA International Conference

The 13th CVSA International Conference was held June 29–July 1, 2018, in Milwaukee, WI. There were people that came from countries all over the world, including the USA, Canada, Japan, and India. Those affected by CVS, either directly or through their loved ones, came together to learn, encourage, and support… You must be a member…

Giving Tuesday to kick start our holiday fundraiser

Giving Tuesday to kick start our holiday fundraiser

We are kick starting our holiday fundraiser on Tuesday Nov 27th: the day of #GivingTuesday. The fundraiser will be open until Dec 24th, and we hope to have reached 2,000 Nok by then. That is the magic number we need to cover the next bill. During the same period, the merchandice in our CVS Awareness…

Vinayak Rao

Vinayak Rao

There is HOPE! Its been 2 months now since I have got my CVS episode and this is quite unbelievable because I never thought I would get better. I am Vinayak Rao a CVSA patient from India suffering since end of 2013-my vomiting episode cycle was once every 10 days… You must be a member…

CVS finally in the the international classification of diseases

CVS finally in the the international classification of diseases

On 18 June 2018, 18 years after the launch of ICD-10, WHO released a version of ICD-11 to allow Member States time to plan implementation. This is anticipating the presentation of ICD-11 to the World Health Assembly in 2019 for adoption by countries. Over a decade in the making, this version is a vast improvement…

Erin

Erin

Starting in 2008, when I was at Union College, I was throwing up more than normal people — probably every couple of months. I would wake up at about 2 a.m. to puke and would be sick for 16 hours. I always thought it was because of drinking, even though I actually hardly drank at…

New facebook group

New facebook group

CVSA Nordic opens a facebook group solely for members of CVSA Nordic. All you need to join the group is your registered email address in CVSA Nordic, and your member number. You’ll find your member number and the link to the new facebook group in your account here at CVSA Nordic.

Rasheera – My Journey living with CVS

Rasheera – My Journey living with CVS

To be completely honest my CVS days are filled with memories of the emergency room and buckets filled with stomach vile and vomit. My mom having to lay cold towels on my head and body because I would sometimes run a fever. Her forcing me into a bath of cold water to help my temperature…