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Our mission is to give support and information to people with CVS and their families
We have a team of contact persons for all of the Nordic countries
We have medical advisors from Karolinska hospital in Sweden and Aava medical center in Finland
There are CVSA and contact persons all over the world, we provide you with their contact information
There are support groups online. We provide you with their links.
What people say about us
Thank you CVSA Nordic for bringing attention to this disease and for helping me find good medicine, so that I can live a normal life.
– Cecilia Appelquist
This page has made living with this disease much easier for me and my son who has had CVS 4 years. He was diagnosed a year after he started having symptoms.
He’s 17, and his episodes have been much lighter after we have received advice about supplements and medication. He never throws up anymore, and the frequency of episodes is halved. It’s easier to ask doctors about medication when you bring documentation on it to the doctor’s office.
It’s also easier for neighbors and friends to believe that the disease is in fact real, when you can name other people with the same disease, and it has a website. To be thought lazy is an unwelcome burden on top of the illness.
I’m forever grateful.
– Evelyn Vartdal Skurtveit
4 years ago if it weren’t for the CVSA Nordic we would still be completely alone, isolated and in the dark as to what was wrong with our daughter. Thanks to their website and their advice/support we were able to get a formal diagnosis for her. Without that she wouldn’t have the treatment options she has today. They really do care and put in the time and effort in trying to ensure awareness is raised of CVS. Give the support sufferers and their caregivers need
– Karen Young
Do you buy a coffee on the way to work? A soda for lunch maybe? Why not match the price of your drink, and donate it so that we can spend more of our time listening to people that need it, communicate with the doctors that knows, and maintain our website so that the information is out there for anyone that needs it.
One drink – one day
When the campaign has reached 2.000 Nok, we will put all the names in a hat and draw a lucky winner of a cup for their morning coffee.
10% of the donated money will be given to research on CVS, the rest will be put into funding CVSA Nordic.